This is AWFUL! We were suppose to leave today, Madison looked so much better. She ate some bananas and some sweet potatoes. A few hours later she was vomiting and had diarrhea. We were not going anywhere. I am so frustrated!
The doctor talked to us and told us we should probably keep her under isolation, as we do not want her to catch anything else. He said this place is worse than a daycare in terms of germs. So what am I suppose to do for this poor child lock her in this bubble metal crib they have her sleeping in. She has not crawled around in a week. She cannot stand because they have an IV in her foot, and now I am suppose to keep her in our room.
He said that this is not the rarest case he has ever seen, that it is typical for small children especially between the ages of 1-2 to be hospitalized for a few days for dehydration and vomiting. He asked what you have been here 3 days... NO! We have been here since SUNDAY and we were here 4 days a week before that. We are going on 6 days this week in the hospital. He then said that we could do an upper GI check to confirm that there isn't anything seriously wrong. Poor Madison is traumatized with everyone poking and touching her and here we go again.
They came in to check her vitals which is blood pressure, oxygen levels, and temp. They do this every 4 hours. She was hysterical afterwards. To the point I was so upset I started crying. She was screaming and rolling around for about an hour total. I didn't know what to do, so I decided to take her out into the hall and stand at the nurses station. They can see what they are doing to this poor child. I stood there until she somewhat calmed down and then we went for a wagon ride. They seemed a little shocked LIKE I MAKE THIS CRAP UP!!! I was so mad the tech that actually made her panic came by 30 minutes later when she was still choking on her own breath and was like she is still upset, like what she did was not that traumatizing. I have decided that I will do this every single time so they can see what they are doing, and maybe they will get tired of me and leave her alone. Tonight one nurse came in and she was super nice and gentle and Madison didn't panic or freak out. It is these nurses that walk around with this attitude with no compassion and bully her that she freaks out.
Tomorrow we are suppose to go for a GI test where she swallows some sort of liquid and they photograph the flow of this substance to make sure everything is working correctly and flowing in the right direction. I cannot take much more of this. I asked my parents to come to go down with her so that I can take a break and possibly get some more work done. Hopefully I do not regret this decision. I am tired, scared, and angry. My child is freaking out, being tortured, and sick, and there is nothing I can do about it...
We have been given a patient advocate to assist us. I am not sure what good that does, but at least someone is listening to us. It gets them more incline to assist or explain things in a friendly manor rather than this medical jargon crap. I am a highly educated person, so I understand K means Potassium or CH is Chloride, but that does not mean I understand ALL THEIR MEDICAL JARGON... I think they were a bit surprised I even understand what I do.
They sent in an dietitian to assist us. What a joke that was! She came in and had no idea why she was here. She said well the doctors were concerned because you are a vegetarian and they were afraid you are not getting enough substance. I know more than she does. I said so basically you have no idea why you are here. I told her my concern is that Madison is having diarrhea and I want food options for her besides stale hard crusted half cooked rice and burnt toast. She is not going to eat this crap! There is nothing nutritional about this garbage they keep sending masked as food. The lady gave me a menu. It was horrific. She was so vague I wanted to smack her. She was telling me I need to eat whole grains, fruits, and vegetables, REALLY YOU THINK! I was so mad. I said could you be a little more specific like perhaps a big concern for vegetarians is a lack in omega 3s and B12 so maybe you should eat these specific foods. She had no idea where to find Zinc, B12 or Omega3s. She suggested pills or supplements. TYPICAL! I was mad. I said never mind. Obviously I am more aware of what I need to supplement into my meals as I have been doing this for a long time. Plus I read books. I try to coordinate different food options like I know Almonds should be eaten daily because they give you those omega 3s. I would rather eat Almonds than spend money on pills. Just another person who was in a hurry to get out of our room trying to brush us off.
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