Monday, May 31, 2010
HOME AT LAST!
A friend had a baby the first week while we were staying in the hospital... she left before we did. This last week another friend had her baby... and she left before we did. I was so jealous. All we wanted to do was go home! I am so glad it is OUR TURN!!! I have never been so excited to be FREE to just drive ANYWHERE I WANT. :O)
THANK YOU!!
I never realized how many people actually read about our life. It is flattering! I appreciate everyone being so helpful and thoughtful during this horrid month. Thank you to everyone who reads our blog, to those that have offered anything and everything, to those who came to visit us, brought us goodies, and those that wrote, called, and messaged. It meant so much to know that we were not alone and that there were people thinking about us.
FREEDOM!!!
WE ARE HOME!!! I have never been so excited to see sunlight! I have never been so excited to feel the warm summer heat on my skin. Yes, it was extremely warm so that feeling only lasted seconds, as it is practically June in Las Vegas.
Madison tested positive for Rotovirus. I cannot believe how disturbing it is to know that while trying to do what is best for my daughter she catches a nasty virus that only sets us back again. Today she was a little tired, a little fussy, and a little traumatized. She was so excited to see our house.
The admitting department was not happy with me as I packed my wallet in one of the many bags we had acquired while staying there so didn't want to unpack everything just to pay my copay. I am so frustrated that I have to pay it in the first place. I was hoping that magically they would forget that I owe them money, wishful thinking as no one is that lucky.
Madison tested positive for Rotovirus. I cannot believe how disturbing it is to know that while trying to do what is best for my daughter she catches a nasty virus that only sets us back again. Today she was a little tired, a little fussy, and a little traumatized. She was so excited to see our house.
The admitting department was not happy with me as I packed my wallet in one of the many bags we had acquired while staying there so didn't want to unpack everything just to pay my copay. I am so frustrated that I have to pay it in the first place. I was hoping that magically they would forget that I owe them money, wishful thinking as no one is that lucky.
Friday, May 28, 2010
CRAVING FRESHAIR
Madison ate a whole banana today. She did not throw up this afternoon. However, she did sleep all day. She slept from 11am-5pm. I thought for sure she would be up all night, but she went to sleep by 8pm and is still asleep. After lying around all day I cannot sleep. I cannot believe we have been here for a week. A week without fresh air, a week without sunlight. I am so sad for her. I really hope we can get out tomorrow. My plan is to take her to the park so she can be in the sun and breath real air. I mean I have never been so excited to go outside into the pollution smog filled city air to breathe.
My parents think we will be leaving tomorrow. I think they are going to keep us another day. She is still on the IV fluids, and with the repeat week long stay I think they are going to take no chances. Especially since they were about to release us on Wednesday and three days later we are still here. I assume they will take her off the fluids tomorrow and see how she eats. We cannot leave if she is not eating and drinking.
Today she ate some of my carrot banana smoothie. She surprisingly loved it, to the point that if you moved the cup she would scream.
My parents think we will be leaving tomorrow. I think they are going to keep us another day. She is still on the IV fluids, and with the repeat week long stay I think they are going to take no chances. Especially since they were about to release us on Wednesday and three days later we are still here. I assume they will take her off the fluids tomorrow and see how she eats. We cannot leave if she is not eating and drinking.
Today she ate some of my carrot banana smoothie. She surprisingly loved it, to the point that if you moved the cup she would scream.
NEVER ENDING
Maybe we get to leave tomorrow? I HOPE FOR TOMORROW as we are not leaving today. The dr said they have someone that was admitted when we were with the same symptoms so we are not the rarest case, as if that is suppose to be comforting. I feel like we take one step forward and 12 steps backwards. She seems worse than yesterday. She seemed so much better this morning. She is just exhausted and just stares at you while in the crib. She saw me lay down on the bed across from her, and she just waves her hand at me. It is heart breaking.
HOSPITAL COPAY
I was visited by the administration for the hospital. I was told that my copay is $250.00 for the visit and they will pay 100% there after. The copay is per visit. SO that is the catch. Since we had a visit a week ago and were discharged, yet came back for the same reasons doesn't matter BECAUSE WE HAD BEEN DISCHARGED, we still owe per visit. So angry about that part, we suffer mentally, emotionally, physically, and now financially because they screwed up REPEATEDLY. First they discharge her too early, then they do not admit her when she's obviously extremely ill so we return only an hour later. I better not have to pay for the 12 hour stay in the ER the day before we were admitted. They are smart they have you wait in the ER for the entire day and the paperwork says you were in the ER on Sunday, but you were admitted on Monday so what they can charge you for 2 different days.
Thank goodness I have health insurance. My thoughts are to put her father down as the primary party responsible for this event and have them bill him to see if he pays it. I wonder if I am able to do that, have them bill him. It is the least he could do! We will see what they say when we leave.
Thank goodness I have health insurance. My thoughts are to put her father down as the primary party responsible for this event and have them bill him to see if he pays it. I wonder if I am able to do that, have them bill him. It is the least he could do! We will see what they say when we leave.
MY STARVING CHILD
Madison has to have some GI procedure where she cannot eat for 4 hours. So they decided she could not have any food from 4am until 8am when the procedure was suppose to happen. It is now 9am and my daughter is screaming because she is so hungry while I sit hopeless unable to help her. This sucks! The only thing that seems to help her is walking around the floor. I think we may have done about 30 rounds... they better take her soon this is ridiculous.
MORE DIARRHEA ON DAY 6
This is terrible... To the point I am throwing away clothes that's how bad it is. Madison woke me with this strange throat type cry. It took me a minute to gather myself. Once I was able to see I notices she was soaked from the waist down. She was covered in diarrhea. Poor baby! I contemplated how long shed been like that. The blanket was soaked. I debate cleaning the outfit or throwing it away. I've throw two out furs away already they were that stained. I just washed our favorite blanket in hopes it's not stained. This sucks!The hardest part we have no laundry, so we must wash it in the bathroom or leave it until I can get home to attend to it. I think I may just toss this one. Well it's not like she completely furs these clothes anyhow. Plus she will need more season appropriate clothes coming up soon.
DAY 5 IN THE HOSPITAL
This is AWFUL! We were suppose to leave today, Madison looked so much better. She ate some bananas and some sweet potatoes. A few hours later she was vomiting and had diarrhea. We were not going anywhere. I am so frustrated!
The doctor talked to us and told us we should probably keep her under isolation, as we do not want her to catch anything else. He said this place is worse than a daycare in terms of germs. So what am I suppose to do for this poor child lock her in this bubble metal crib they have her sleeping in. She has not crawled around in a week. She cannot stand because they have an IV in her foot, and now I am suppose to keep her in our room.
He said that this is not the rarest case he has ever seen, that it is typical for small children especially between the ages of 1-2 to be hospitalized for a few days for dehydration and vomiting. He asked what you have been here 3 days... NO! We have been here since SUNDAY and we were here 4 days a week before that. We are going on 6 days this week in the hospital. He then said that we could do an upper GI check to confirm that there isn't anything seriously wrong. Poor Madison is traumatized with everyone poking and touching her and here we go again.
They came in to check her vitals which is blood pressure, oxygen levels, and temp. They do this every 4 hours. She was hysterical afterwards. To the point I was so upset I started crying. She was screaming and rolling around for about an hour total. I didn't know what to do, so I decided to take her out into the hall and stand at the nurses station. They can see what they are doing to this poor child. I stood there until she somewhat calmed down and then we went for a wagon ride. They seemed a little shocked LIKE I MAKE THIS CRAP UP!!! I was so mad the tech that actually made her panic came by 30 minutes later when she was still choking on her own breath and was like she is still upset, like what she did was not that traumatizing. I have decided that I will do this every single time so they can see what they are doing, and maybe they will get tired of me and leave her alone. Tonight one nurse came in and she was super nice and gentle and Madison didn't panic or freak out. It is these nurses that walk around with this attitude with no compassion and bully her that she freaks out.
Tomorrow we are suppose to go for a GI test where she swallows some sort of liquid and they photograph the flow of this substance to make sure everything is working correctly and flowing in the right direction. I cannot take much more of this. I asked my parents to come to go down with her so that I can take a break and possibly get some more work done. Hopefully I do not regret this decision. I am tired, scared, and angry. My child is freaking out, being tortured, and sick, and there is nothing I can do about it...
We have been given a patient advocate to assist us. I am not sure what good that does, but at least someone is listening to us. It gets them more incline to assist or explain things in a friendly manor rather than this medical jargon crap. I am a highly educated person, so I understand K means Potassium or CH is Chloride, but that does not mean I understand ALL THEIR MEDICAL JARGON... I think they were a bit surprised I even understand what I do.
They sent in an dietitian to assist us. What a joke that was! She came in and had no idea why she was here. She said well the doctors were concerned because you are a vegetarian and they were afraid you are not getting enough substance. I know more than she does. I said so basically you have no idea why you are here. I told her my concern is that Madison is having diarrhea and I want food options for her besides stale hard crusted half cooked rice and burnt toast. She is not going to eat this crap! There is nothing nutritional about this garbage they keep sending masked as food. The lady gave me a menu. It was horrific. She was so vague I wanted to smack her. She was telling me I need to eat whole grains, fruits, and vegetables, REALLY YOU THINK! I was so mad. I said could you be a little more specific like perhaps a big concern for vegetarians is a lack in omega 3s and B12 so maybe you should eat these specific foods. She had no idea where to find Zinc, B12 or Omega3s. She suggested pills or supplements. TYPICAL! I was mad. I said never mind. Obviously I am more aware of what I need to supplement into my meals as I have been doing this for a long time. Plus I read books. I try to coordinate different food options like I know Almonds should be eaten daily because they give you those omega 3s. I would rather eat Almonds than spend money on pills. Just another person who was in a hurry to get out of our room trying to brush us off.
The doctor talked to us and told us we should probably keep her under isolation, as we do not want her to catch anything else. He said this place is worse than a daycare in terms of germs. So what am I suppose to do for this poor child lock her in this bubble metal crib they have her sleeping in. She has not crawled around in a week. She cannot stand because they have an IV in her foot, and now I am suppose to keep her in our room.
He said that this is not the rarest case he has ever seen, that it is typical for small children especially between the ages of 1-2 to be hospitalized for a few days for dehydration and vomiting. He asked what you have been here 3 days... NO! We have been here since SUNDAY and we were here 4 days a week before that. We are going on 6 days this week in the hospital. He then said that we could do an upper GI check to confirm that there isn't anything seriously wrong. Poor Madison is traumatized with everyone poking and touching her and here we go again.
They came in to check her vitals which is blood pressure, oxygen levels, and temp. They do this every 4 hours. She was hysterical afterwards. To the point I was so upset I started crying. She was screaming and rolling around for about an hour total. I didn't know what to do, so I decided to take her out into the hall and stand at the nurses station. They can see what they are doing to this poor child. I stood there until she somewhat calmed down and then we went for a wagon ride. They seemed a little shocked LIKE I MAKE THIS CRAP UP!!! I was so mad the tech that actually made her panic came by 30 minutes later when she was still choking on her own breath and was like she is still upset, like what she did was not that traumatizing. I have decided that I will do this every single time so they can see what they are doing, and maybe they will get tired of me and leave her alone. Tonight one nurse came in and she was super nice and gentle and Madison didn't panic or freak out. It is these nurses that walk around with this attitude with no compassion and bully her that she freaks out.
Tomorrow we are suppose to go for a GI test where she swallows some sort of liquid and they photograph the flow of this substance to make sure everything is working correctly and flowing in the right direction. I cannot take much more of this. I asked my parents to come to go down with her so that I can take a break and possibly get some more work done. Hopefully I do not regret this decision. I am tired, scared, and angry. My child is freaking out, being tortured, and sick, and there is nothing I can do about it...
We have been given a patient advocate to assist us. I am not sure what good that does, but at least someone is listening to us. It gets them more incline to assist or explain things in a friendly manor rather than this medical jargon crap. I am a highly educated person, so I understand K means Potassium or CH is Chloride, but that does not mean I understand ALL THEIR MEDICAL JARGON... I think they were a bit surprised I even understand what I do.
They sent in an dietitian to assist us. What a joke that was! She came in and had no idea why she was here. She said well the doctors were concerned because you are a vegetarian and they were afraid you are not getting enough substance. I know more than she does. I said so basically you have no idea why you are here. I told her my concern is that Madison is having diarrhea and I want food options for her besides stale hard crusted half cooked rice and burnt toast. She is not going to eat this crap! There is nothing nutritional about this garbage they keep sending masked as food. The lady gave me a menu. It was horrific. She was so vague I wanted to smack her. She was telling me I need to eat whole grains, fruits, and vegetables, REALLY YOU THINK! I was so mad. I said could you be a little more specific like perhaps a big concern for vegetarians is a lack in omega 3s and B12 so maybe you should eat these specific foods. She had no idea where to find Zinc, B12 or Omega3s. She suggested pills or supplements. TYPICAL! I was mad. I said never mind. Obviously I am more aware of what I need to supplement into my meals as I have been doing this for a long time. Plus I read books. I try to coordinate different food options like I know Almonds should be eaten daily because they give you those omega 3s. I would rather eat Almonds than spend money on pills. Just another person who was in a hurry to get out of our room trying to brush us off.
TRAUMATIZED LITTLE ONE
They replaced my bed after about the 5th complaint. The bed had some sort of hole in the center. Of course my mother noticed it after she went to change the sheets when Madison threw up everywhere. She was mad. The bed just sunk down in the center. No wonder I hurt EVERYWHERE.
The worst part all of this is that they keep switching our nurse. If they left us with the same nurse maybe Madison could become more familiar with someone and not have to meet a stranger every shift change. We did have one day nurse for the first couple of days, who was awesome, but she is now off for 4 days. At the rate we are going we will be here when she returns back to her shift. I certainly HOPE not.
The smelly nurse is back. No wonder Madison screams she stinks like a mixture between stale smoke possibly even cigars, BO, bad choice in perfume, and sour bad breath... She was the one that put Madison into an hour long panic attack. I think she feels some remorse as she is being incredibly quiet this time trying not to wake her.
I just hope I have not done serious damage to my child by coming to this hospital... I hope she is young enough to not remember any of this or for it to have an effect on her personality.
The worst part all of this is that they keep switching our nurse. If they left us with the same nurse maybe Madison could become more familiar with someone and not have to meet a stranger every shift change. We did have one day nurse for the first couple of days, who was awesome, but she is now off for 4 days. At the rate we are going we will be here when she returns back to her shift. I certainly HOPE not.
The smelly nurse is back. No wonder Madison screams she stinks like a mixture between stale smoke possibly even cigars, BO, bad choice in perfume, and sour bad breath... She was the one that put Madison into an hour long panic attack. I think she feels some remorse as she is being incredibly quiet this time trying not to wake her.
I just hope I have not done serious damage to my child by coming to this hospital... I hope she is young enough to not remember any of this or for it to have an effect on her personality.
Thursday, May 27, 2010
Wednesday, May 26, 2010
STILL SICK
I think everyone is shocked that she is BACK on the IV. Plus the IV looks horrible. They put it in the worst spot EVER. in the inner arm elbow crease. She cannot bend her arm its all back logged with blood. It looks awful.
They keep checking it because of course they do not want to redo it. Last night was rough. The PEDs Dr just called to follow up with us to confirm how we are doing. He is very concerned and looking at calling the hospital to coordinate with the admitting doctor to figure this out.
She woke up with vomit everywhere and in her hair and across her chest on top of having a massive bowel movement. They were pretty much the same thing. It was horrible. I am surprised there is anything left in her she hasn't been eating much or drinking anything. Poor baby!
We are back on the IV and fluids until they tell us otherwise. She sleeps while I thought I would try to get some work done. I have yet to have a shower. I am going on day 4 in the same clothes and lack of shower. The nurse asked why I don't go home and shower. I asked if she was going to sit with her, she said what about dad. Yeah since he doesn't know we are here that probably won't work. Thank goodness my mother is able to come here. I suggested earlier than later as she is sleeping, but my mother is where my sister gets her girly personality from as she showers regularly does her hair and wears make up. HA! Me on the other hand I am not that girly.
They keep checking it because of course they do not want to redo it. Last night was rough. The PEDs Dr just called to follow up with us to confirm how we are doing. He is very concerned and looking at calling the hospital to coordinate with the admitting doctor to figure this out.
She woke up with vomit everywhere and in her hair and across her chest on top of having a massive bowel movement. They were pretty much the same thing. It was horrible. I am surprised there is anything left in her she hasn't been eating much or drinking anything. Poor baby!
We are back on the IV and fluids until they tell us otherwise. She sleeps while I thought I would try to get some work done. I have yet to have a shower. I am going on day 4 in the same clothes and lack of shower. The nurse asked why I don't go home and shower. I asked if she was going to sit with her, she said what about dad. Yeah since he doesn't know we are here that probably won't work. Thank goodness my mother is able to come here. I suggested earlier than later as she is sleeping, but my mother is where my sister gets her girly personality from as she showers regularly does her hair and wears make up. HA! Me on the other hand I am not that girly.
Tuesday, May 25, 2010
THE PEDS DOCTOR
Since everything on this blog this month has been so sad, here is something more uplifting...
Our PEDS doctor showed up last night about 8pm and stayed for an hour. He was so sweet. He asked about Madison and of course was sad to see her in her condition. He explained the different specialists and tests that will be done.
At one point the conversation veered off course towards Madison's father. At another point it shifted to my new house and how I need to buy a TV. So he mentioned he has a TV that he is not using, which I couldn't tell if he was saying if you want my enormously large TV you can have it or if we were just talking about TVs. A SONY 1080p 65" HDTV that he is not using. That is massively large, but I would so do it.
It was so nice to have adult interaction and conversation. He has been practicing for 10 years. How old does that make him? I figured he was around 38 years old, but is that rude to ask...
SO this morning he was texting me to say HI and hoped that Madison was well. I was not sure how to respond... I am still not sure what to say...
Our PEDS doctor showed up last night about 8pm and stayed for an hour. He was so sweet. He asked about Madison and of course was sad to see her in her condition. He explained the different specialists and tests that will be done.
At one point the conversation veered off course towards Madison's father. At another point it shifted to my new house and how I need to buy a TV. So he mentioned he has a TV that he is not using, which I couldn't tell if he was saying if you want my enormously large TV you can have it or if we were just talking about TVs. A SONY 1080p 65" HDTV that he is not using. That is massively large, but I would so do it.
It was so nice to have adult interaction and conversation. He has been practicing for 10 years. How old does that make him? I figured he was around 38 years old, but is that rude to ask...
SO this morning he was texting me to say HI and hoped that Madison was well. I was not sure how to respond... I am still not sure what to say...
DEATH IN THE ICU
Madison cannot walk she is way to skinny to hold herself up. She cannot crawl around on the floor because we are in a disgustingly dirty hospital. I feel horrible keeping her locked up in this room. So we take wagon rides throughout the day. She sits in the wagon while I walk the floors, and she loves it. There is a little boy with cancer across from us. He is so CUTE she loves seeing him when he does his walks. There is a 14 year old girl who loves seeing Madison so we walk by her room and wave. We walk by the nurses desks and she loves waving hello to them.
So I guess we are next to ICU or in a room on the ICU ward. Well we walk by a room with a lady sitting at a desk set up in the hall. Madison waves and makes her squeal when she is excited. I was surprised because lately she dislikes any new strangers. She was even nervous about seeing the best friend who she KNOWS better than her own father. So the lady waves and says hello. Tells us she is sorry for being in the hall but she is monitoring the baby and points to the baby in the room. I look and there is a small child about Madison's size (doesn't say much since we are wearing 6-9 month clothes that fall off of her). We think nothing of it and head back to the room.
Later we are in our room when the alarms go off stating CODE BLUE in RM... Madison was napping so once she was awake they come to take more vitals and blood so to calm her down again I take her out in the wagon. We exit our room and it is a staff meeting in front of our door. IT looked bad. Our nurse was upset you could see it in her face. When we get a few doors down where the nurse had been set up no one is around. The room is empty. We quickly pass the area and move back towards our room. At the other end of the ward there is an open door and a lady starts screaming to someone. She was hysterical screaming about how her baby is gone. That she lost him. He died and that she will never have him back. My heart just sunk into my chest as I stare at Madison. She may be sick but at least she is alive. I felt horrible as I hear the nurses at the desk comment that the room on the end is being used for the mother. No one was helping this lady. I wanted everyone to stop what they were doing and acknowledge the fact that the world is different. The world had stopped for this lady, but IT was as if nothing traumatic happened to everyone else. I wanted to scream and kick and yell for her. I cannot imagine her pain. The floor seemed exactly the same as everyone went about their day like it was normal. I felt horrible for her. I wanted to scream at the nurses myself for just walking by or meeting in the halls talking about it when this mother was grieving.
I do not know who reads this blog, but if you think of us or pray for us, I hope you take moment to pray for this mother of the baby in room 547 because no one should have to endure that. She will need more strength than anyone can comprehend right now, and she will not be able to do it alone. The feeling around that end of the ward is eerie. Madison stares and points at the room making this ughhh noise. It is strange because I wonder if she understands what happened or sees or senses something that we as adults do not.
So I guess we are next to ICU or in a room on the ICU ward. Well we walk by a room with a lady sitting at a desk set up in the hall. Madison waves and makes her squeal when she is excited. I was surprised because lately she dislikes any new strangers. She was even nervous about seeing the best friend who she KNOWS better than her own father. So the lady waves and says hello. Tells us she is sorry for being in the hall but she is monitoring the baby and points to the baby in the room. I look and there is a small child about Madison's size (doesn't say much since we are wearing 6-9 month clothes that fall off of her). We think nothing of it and head back to the room.
Later we are in our room when the alarms go off stating CODE BLUE in RM... Madison was napping so once she was awake they come to take more vitals and blood so to calm her down again I take her out in the wagon. We exit our room and it is a staff meeting in front of our door. IT looked bad. Our nurse was upset you could see it in her face. When we get a few doors down where the nurse had been set up no one is around. The room is empty. We quickly pass the area and move back towards our room. At the other end of the ward there is an open door and a lady starts screaming to someone. She was hysterical screaming about how her baby is gone. That she lost him. He died and that she will never have him back. My heart just sunk into my chest as I stare at Madison. She may be sick but at least she is alive. I felt horrible as I hear the nurses at the desk comment that the room on the end is being used for the mother. No one was helping this lady. I wanted everyone to stop what they were doing and acknowledge the fact that the world is different. The world had stopped for this lady, but IT was as if nothing traumatic happened to everyone else. I wanted to scream and kick and yell for her. I cannot imagine her pain. The floor seemed exactly the same as everyone went about their day like it was normal. I felt horrible for her. I wanted to scream at the nurses myself for just walking by or meeting in the halls talking about it when this mother was grieving.
I do not know who reads this blog, but if you think of us or pray for us, I hope you take moment to pray for this mother of the baby in room 547 because no one should have to endure that. She will need more strength than anyone can comprehend right now, and she will not be able to do it alone. The feeling around that end of the ward is eerie. Madison stares and points at the room making this ughhh noise. It is strange because I wonder if she understands what happened or sees or senses something that we as adults do not.
BACK ON FLUIDS
They removed her IV, and now she is back on an IV at 35cc per hour. She was at 50cc per hour but that was too much and got down to 15, but for some reason she is just not getting well. She will not eat or drink anything. She breastfeeds but not much. So we are back on IV fluids, not the ones with the carbon, but this one is fluids with potassium. This sucks! Poor baby. The IV looks horrible. Here I thought the first one looked bad, this one is awful!
I HATE THIS HOSPITAL!
I HATE this hospital. I am not an angry person. I don't even hate her father. I am not even angry at her dad for not being here, that is how non-confrontational I am, but I HATE this place. I rarely get mad, but this is ridiculous!
Maybe it is the neglect we received when we first got here allowing her fever to spike to 105 degrees. Then again maybe it is the idiot labs that take blood for a living and still cannot do it correctly. Or maybe it is the fact that they cannot tell me what is wrong with my daughter. We have been here a total of 3 different times. I am tired of the response it is a VIRUS...
Tonight she finally got quiet on my chest when the fire alarm goes off. You have got to be kidding me a FIRE ALARM at 9pm at night. She was crying and awake. No emergency we are just not able to use the elevators. GREAT! What is wrong with this place!
I considered taking a shower when she fell asleep, oh wait that probably wouldn't be such a good idea as they do not have hot water from 10am -5am. UN-FREAKING-BELIEVABLE! I suppose another few days of no shower wearing the same clothes wont hurt anything... OMG!
Maybe it is the neglect we received when we first got here allowing her fever to spike to 105 degrees. Then again maybe it is the idiot labs that take blood for a living and still cannot do it correctly. Or maybe it is the fact that they cannot tell me what is wrong with my daughter. We have been here a total of 3 different times. I am tired of the response it is a VIRUS...
Tonight she finally got quiet on my chest when the fire alarm goes off. You have got to be kidding me a FIRE ALARM at 9pm at night. She was crying and awake. No emergency we are just not able to use the elevators. GREAT! What is wrong with this place!
I considered taking a shower when she fell asleep, oh wait that probably wouldn't be such a good idea as they do not have hot water from 10am -5am. UN-FREAKING-BELIEVABLE! I suppose another few days of no shower wearing the same clothes wont hurt anything... OMG!
BLOOD TECHS
I hate this hospital! For how much education these people require they are IDIOTS! Madison's doctor requested tests to be ran. They come to take blood. They do this for a living you would think they would know what they are doing. 3 veins later they actually take blood. She is hysterical and they get the required blood.
This morning they come back in at 5am. My nurse was pissed. She yelled at them and said I do not care this little girl is sick and you do not NEED this blood at 5am. NO get out! She made them come back while she was not sleeping. So they returned today. They were here to take blood. I of course wanted to know why. They said your doctor put in more orders. I was PISSED! I started yelling. NO HE DIDN'T. I went off. He was so angry at these idiots! He didn't put in new orders they were trying to cover up the fact that they did not draw the right amount of blood. This is your job, this is what you do, how do you screw it up that bad. So they had to draw more blood.
It makes me so angry that they restrain her and practically lay on her and the tell her oh it's okay. I was so mad. I was like NO it is not okay you are hurting her do not TELL her it is OKAY because it is not OKAY. So they get blood from one vein and I grabbed her she was hysterical. They wanted more. The nurse came in to make sure they gathered the right amount as they messed up the first time. THESE STUPID TECHS cut her heel to gather 10ml. She was screaming. That is WAY to much to gather from a heel. Finally they left. I told the nurse if they come back I will get up in jail for assault so you better keep them away from my daughter.
Before the nurse was parting shifts for the day, she came up to me and said that these MORONS did not collect enough blood AGAIN! They were told how much to collect, but apparently they didn't fill the right tubes. I was so mad! I said NO absolutely not no test is worth this, it's just a guessing game. The dr can deal with the fact that it was not done. They touch her I will fight, scream, beat them down, and sue this hospital. She said I agree this is ridiculous. The dr is so angry he could not believe they had poked her so many times. Her poor arm has tiny little poke holes and bruises all over.
Thank goodness the test they didn't run is just an allergy test so it wont get us out of the hospital any faster. So it is something that we can follow up with the GI dr at a later date. Give this poor child a break. She panics every time someone comes into our room and it takes forever to calm her down. It is awful!
This morning they come back in at 5am. My nurse was pissed. She yelled at them and said I do not care this little girl is sick and you do not NEED this blood at 5am. NO get out! She made them come back while she was not sleeping. So they returned today. They were here to take blood. I of course wanted to know why. They said your doctor put in more orders. I was PISSED! I started yelling. NO HE DIDN'T. I went off. He was so angry at these idiots! He didn't put in new orders they were trying to cover up the fact that they did not draw the right amount of blood. This is your job, this is what you do, how do you screw it up that bad. So they had to draw more blood.
It makes me so angry that they restrain her and practically lay on her and the tell her oh it's okay. I was so mad. I was like NO it is not okay you are hurting her do not TELL her it is OKAY because it is not OKAY. So they get blood from one vein and I grabbed her she was hysterical. They wanted more. The nurse came in to make sure they gathered the right amount as they messed up the first time. THESE STUPID TECHS cut her heel to gather 10ml. She was screaming. That is WAY to much to gather from a heel. Finally they left. I told the nurse if they come back I will get up in jail for assault so you better keep them away from my daughter.
Before the nurse was parting shifts for the day, she came up to me and said that these MORONS did not collect enough blood AGAIN! They were told how much to collect, but apparently they didn't fill the right tubes. I was so mad! I said NO absolutely not no test is worth this, it's just a guessing game. The dr can deal with the fact that it was not done. They touch her I will fight, scream, beat them down, and sue this hospital. She said I agree this is ridiculous. The dr is so angry he could not believe they had poked her so many times. Her poor arm has tiny little poke holes and bruises all over.
Thank goodness the test they didn't run is just an allergy test so it wont get us out of the hospital any faster. So it is something that we can follow up with the GI dr at a later date. Give this poor child a break. She panics every time someone comes into our room and it takes forever to calm her down. It is awful!
DAY 5 WITHOUT A SHOWER
I hate this! I swear these people should all be fired! We got a patient advocate. The dr ordered more labs. Poor Madison! I was like do I have a choice... No of course not but if it will get us out of here... So they draw more blood. Poor baby!!
So they said we can go home if she eats. Except she threw it up 2 times. They checked her levels and we are back on the fluids again. They told me they were so low that we were to add bicarb to our fluids. The IV went bad because they did it in a bad spot so they had to do it again.
I was so mad this poor girl has little poke holes and bruises all up her arm. What are they doing! While sitting here there is. Code PINK... Apparently they LOST a baby. So no one could leave.
I want a safe place for Madison and decided it was her room. They are not allowed to do procedures in her room. I don't care she needs somewhere where she feels safe because she's scared of anyone who walks into the room. So they took is to the procedure room try 3 different times. Cannot get an IV supposively because she's too dehydrated but I think it was because she's too small. They called in someone from NICU to help. First try she gets it in her foot. Poor thing an IV in her foot.
While in the room they have a code RED on the 3rd floor some spill in an OR... Then they had a fire somewhere. You have got to be kidding me.
So poor Madisons exhausted. They bring in a patient advocate to be aware of our treatment. So tonight shift change they tell me she's not to be on bicarb fluids because it's a typical dehydration case. No it's not! I was so mad! So here we are she's worse and all we want to do is go home.
I hurt everywhere. So tired and so frustrated. My friend had her baby today here... I hope they are having better luck than we are. At least we got a shower today and changed our clothes. That was great! Poor Madison needed a bath.
So they said we can go home if she eats. Except she threw it up 2 times. They checked her levels and we are back on the fluids again. They told me they were so low that we were to add bicarb to our fluids. The IV went bad because they did it in a bad spot so they had to do it again.
I was so mad this poor girl has little poke holes and bruises all up her arm. What are they doing! While sitting here there is. Code PINK... Apparently they LOST a baby. So no one could leave.
I want a safe place for Madison and decided it was her room. They are not allowed to do procedures in her room. I don't care she needs somewhere where she feels safe because she's scared of anyone who walks into the room. So they took is to the procedure room try 3 different times. Cannot get an IV supposively because she's too dehydrated but I think it was because she's too small. They called in someone from NICU to help. First try she gets it in her foot. Poor thing an IV in her foot.
While in the room they have a code RED on the 3rd floor some spill in an OR... Then they had a fire somewhere. You have got to be kidding me.
So poor Madisons exhausted. They bring in a patient advocate to be aware of our treatment. So tonight shift change they tell me she's not to be on bicarb fluids because it's a typical dehydration case. No it's not! I was so mad! So here we are she's worse and all we want to do is go home.
I hurt everywhere. So tired and so frustrated. My friend had her baby today here... I hope they are having better luck than we are. At least we got a shower today and changed our clothes. That was great! Poor Madison needed a bath.
LEAVING TOMORROW?
Just kidding... I guess we aren't leaving today and they are putting her back on the IV fluids because she's not drinking.
HOSPITAL UPDATE
The GI Dr came to see us. He's wonderful. He said as long as the vomiting has stopped he doesn't see anything wrong with leaving... Just the diarrhea is getting more. At least she's not vomiting. I conplained. I'm tired of them coming in at 5am waking her up.
They tried this time and I about had it. Everytime she's hysterical after for about 10-20 minutes.
I discovered they wanted more blood because the idiot who took blood yesterday filled the wrong size tubes. So she is to be tortured again! So mad!!! So they left I made them come back when she's awake.
I asked for her to be taken off the IV. Why am I telling them what to do? They should be helping us instead they aren't. We want to go home. We can't go home if she's on the IV. We can't if she won't eat. She won't eat if she's on fluids. So we fight with them.
I want out of here. I feel like germs are everywhere! I feel like being here got her sicker! This sucks!
They tried this time and I about had it. Everytime she's hysterical after for about 10-20 minutes.
I discovered they wanted more blood because the idiot who took blood yesterday filled the wrong size tubes. So she is to be tortured again! So mad!!! So they left I made them come back when she's awake.
I asked for her to be taken off the IV. Why am I telling them what to do? They should be helping us instead they aren't. We want to go home. We can't go home if she's on the IV. We can't if she won't eat. She won't eat if she's on fluids. So we fight with them.
I want out of here. I feel like germs are everywhere! I feel like being here got her sicker! This sucks!
I HATE HOSPITALS
It's utterly official I HATE Hospitals... I think she caught this here last time we were here. That's horrible! We were admitted last time for dehydration and severe constipation. Madison vomits before she has a bowl movement. Well last week she was trying to pass an extremely massive bowl causing her to vomit to the point of dehydration.
We were here... I wonder how long it takes for a virus to become active... We got here at 7am Tuesday morning she was admitted and Thursday she finally passes the massive bowl movement... I blame it on the WAGON... They didn't clean it... Bet you!
That's totally what we get for sharing! We played with the hospital toys and use their wagon...
A week later... I'm suppose to give her a stool softener to keep her regular... Thursday night she vomits trying to pass a bowl movement so since she was fine after passing a bowl movement we waited. Saturday she was fine and Sunday she was vomiting and diarrhea. Completely a different symptom as to why she vomited on Thursday? Or is it? So are these two related? They always think it's the popular trend virus because they see it all the time... Last time it wasn't... This time it us very possible...
Whatever it is this is awful! The nurse says she thinks she's passing the virus so we get to deal with the previous problem... Either way this is a blessing. The big hospital fuss got us in to the GI dr and got them moving forward with the GI problems... The only thing is this set us back severely in the weight gaining department. I am flabbergasted! She's not getting IRON or her Omega 3s from an IV... So you would think that'd be a concern but the meals aren't nutrious enough to help fight infection or give her what she needs. Their goal isn't cure... Their goal is stable to go home and figure it out yourself...
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TUMMY VIRUS
So here I am listening to Madison sing herself to sleep. She woke very fussy so I got her started breastfeeding when she started with the explosive mess. She's lost so much weight that her size 3 diapers don't fit. Poor baby!!! Amazingly enough she managed to get it all over my bed but somehow missed her pants and my clothes.
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Monday, May 24, 2010
BACK TO THE HOSPITAL
We came to the ER because this morning Madison was throwing up all day. Then she had a severe bowl movement to the point Id call it diarrhea. I called my PED dr and he said he'd come by the house. She started turning purple she looked so cold so I wrapped her up put her
in the tub warm water she got her color back. Grabbed her and we went to the ER.
in the tub warm water she got her color back. Grabbed her and we went to the ER.
They gave us pedilite and anti vomit meds after poking and torturing her. Never took blood or gave us an IV. He said that she's been fine she has vomited in 30 minutes. So sent us on our way.
We get home and she starts vomiting. I'm frustrated angry at this idiot dr. So I call them. They say come back. Are you KIDDING me!!! So we go back and sit and sit. Finally I say something she's getting hotter the longer I sit here she's burning up.
She was 104.7!!! They hadn't gotten us N IV she had NOTHING down all day I was so mad. So finally they got fluids after it took them 3 tries because she's so dehydrated.
So now we sit in this tiny room where I sit in a small chair while she sleeps in a bed with her arm all boarded up. The PEDs dr called to check on us. Was going to come to my house which
everyone seems to find bizarre even the ER dr was like what.... Labs are back so I wonder when they come explain to me that she has a virus... Here we go again back upstairs to PEDs ward.
Sent from my Iphone
Sunday, May 23, 2010
SICK AGAIN...
Madison is throwing up again. I breastfed her this morning and she vomits all over my bed. She threw up last nights dinner mixed with morning breast milk. She was mad. I don't blame her. I want this to stop too and I am not the one throwing up.
We tried breakfast. I gave her some juice and that came up as well. I tried 1/2 a pear, 1/2 a banana, and bread. It somewhat stayed down. She got the hiccups after some water and started heaving like she was going to throw up, but only spitting up randomly. At least she has kept this down. Now she naps.
They say track everything she does and eats. Thank goodness for this blog. She has not had a bowel movement since Friday. They said increase her Mira lax dosage. So they get her to pass a bowel movement, what we have to go through this every single time. I am so angry that NO one is offering a solution or taking the time to come up with a solution, they are just putting a band aid on it and referring us to someone else. This is VERY frustrating.
Of course friends are giving suggestions, but it's not a virus, she is not allergic to her food. Her diet has not changed at all since forever so shouldn't this have been happening before not just with in the last couple months. This is not caused by soy because we DO NOT eat SOY. It is not caused by milk or I feel she would have been vomiting a long time ago. I do not believe it is caused by wheat, but who knows she could be allergic to that as well. Then again the doctor thinks it is something more than that because it's not consistent and not after eating specific foods. She will not have had any gluten or wheat and vomit. Then she will have had no milk and still vomit. One consistent pattern is she vomits if she doesn't have a bowl movement, which indicates a blockage, so why has a doctor not done an ultra sound to see what is going on.
Tomorrow I call the PEDs dr, the heart dr, GI dr, and a new GI dr. Someone better help us soon! She is already too small! Can I sue them for not paying attention to my ill child?
We tried breakfast. I gave her some juice and that came up as well. I tried 1/2 a pear, 1/2 a banana, and bread. It somewhat stayed down. She got the hiccups after some water and started heaving like she was going to throw up, but only spitting up randomly. At least she has kept this down. Now she naps.
They say track everything she does and eats. Thank goodness for this blog. She has not had a bowel movement since Friday. They said increase her Mira lax dosage. So they get her to pass a bowel movement, what we have to go through this every single time. I am so angry that NO one is offering a solution or taking the time to come up with a solution, they are just putting a band aid on it and referring us to someone else. This is VERY frustrating.
Of course friends are giving suggestions, but it's not a virus, she is not allergic to her food. Her diet has not changed at all since forever so shouldn't this have been happening before not just with in the last couple months. This is not caused by soy because we DO NOT eat SOY. It is not caused by milk or I feel she would have been vomiting a long time ago. I do not believe it is caused by wheat, but who knows she could be allergic to that as well. Then again the doctor thinks it is something more than that because it's not consistent and not after eating specific foods. She will not have had any gluten or wheat and vomit. Then she will have had no milk and still vomit. One consistent pattern is she vomits if she doesn't have a bowl movement, which indicates a blockage, so why has a doctor not done an ultra sound to see what is going on.
Tomorrow I call the PEDs dr, the heart dr, GI dr, and a new GI dr. Someone better help us soon! She is already too small! Can I sue them for not paying attention to my ill child?
Friday, May 21, 2010
MOM RAMBLE
We were going to go get the blood work done yesterday, but the stool sample reads must be frozen while the other one is room temp and must be returned within 6 hours. That sounds reasonable, when I work, and she has a bowl movement around every 4 days... LOVELY! Plus did I mention they close at 430p.m. Not to mention they are the rudest people I have ever encountered in a public customer service facility. The joys of the medical or sick world.
PEDS DOCTOR
I decided not to take her to the dr today. She seemed the same. I figure it's so much time, money, and discouraging when they have nothing new to tell me. I actually felt bad that I didn't take her this afternoon when I checked my voicemail and discovered the PED dr. called us late last night about 930pm to check on us. Said he was thinking about us and wanted to make sure we were okay, and if I needed anything he would come to me if he had to. I thought that was really comforting. With everything going on that made me feel better.
You can tell Madison doesn't feel good as she was very cranky today. She does not like to be out of view of me. If I leave the room she is not happy, unless of course she is with my dad. We went to see him tonight. As soon as we got there her face got all puffy and her eyes turned red. I never realized how much dander animals bring to the home. I didn't realize she was so affected by it. We ended up leaving as she started sneezing and rubbing her eyes they were getting worse. Poor thing. I assume that her immune system is down so it brings out the worst. I cannot imagine she developed allergies towards a dog she used to live with.
You can tell Madison doesn't feel good as she was very cranky today. She does not like to be out of view of me. If I leave the room she is not happy, unless of course she is with my dad. We went to see him tonight. As soon as we got there her face got all puffy and her eyes turned red. I never realized how much dander animals bring to the home. I didn't realize she was so affected by it. We ended up leaving as she started sneezing and rubbing her eyes they were getting worse. Poor thing. I assume that her immune system is down so it brings out the worst. I cannot imagine she developed allergies towards a dog she used to live with.
Thursday, May 20, 2010
THROWING UP AGAIN
Madison is sick again. She threw up all over the floor three different times, and then finishing by covering me in vomit. Who knew she could possibly be full of so much substance.
I called the Ped Dr in a little bit of a panic. This is not good she already lost a lb what is causing this. He was very nice, and said to monitor her tonight and to come see him tomorrow. If she continues to throw up tonight to call him and she will have to be seen tonight.
I am so tired. I am trying to find some sort of outlet for all this stress, as currently my skin in the inside of my mouth is the stress outlet. I have these cold sore type canker sores all OVER my mouth, throat, and gums. I think mostly I am just tired of no one doing anything to stop the problem. Plus the idea that her father has no idea what so ever that she is so ill. He has no idea that we stayed in the hospital for a week. I mean how wool he when he changes his phone number every time I try to reach him. People say to go to his parents house and hunt him down. What for? I should not have to do that. Plus, I understand that Madison has his genes and his JUNK DNA, but he is nothing to her but stranger she probably doesn't even remember so not as if he will help the situation. Plus it is obvious he does not want to be bothered or contacted by us by the apparent disconnected phone number.
So many people send their love and prayers... I am so nonchalant myself, so I get scared that I under react sometimes... so when the Dr gets worked up I tend to panic. This is me panicking... Never mind I am too tired to panic.
I called the Ped Dr in a little bit of a panic. This is not good she already lost a lb what is causing this. He was very nice, and said to monitor her tonight and to come see him tomorrow. If she continues to throw up tonight to call him and she will have to be seen tonight.
I am so tired. I am trying to find some sort of outlet for all this stress, as currently my skin in the inside of my mouth is the stress outlet. I have these cold sore type canker sores all OVER my mouth, throat, and gums. I think mostly I am just tired of no one doing anything to stop the problem. Plus the idea that her father has no idea what so ever that she is so ill. He has no idea that we stayed in the hospital for a week. I mean how wool he when he changes his phone number every time I try to reach him. People say to go to his parents house and hunt him down. What for? I should not have to do that. Plus, I understand that Madison has his genes and his JUNK DNA, but he is nothing to her but stranger she probably doesn't even remember so not as if he will help the situation. Plus it is obvious he does not want to be bothered or contacted by us by the apparent disconnected phone number.
So many people send their love and prayers... I am so nonchalant myself, so I get scared that I under react sometimes... so when the Dr gets worked up I tend to panic. This is me panicking... Never mind I am too tired to panic.
Wednesday, May 19, 2010
LOST A LB IN A WEEK
She was 17.2lbs at our appointment Monday. She was 18.5lbs the week prior, and in the hospital she got down to 16.5lbs. I feel like she looks so skinny. The doctor did say she is growing length wise, and her head is above normal so this is good.
The hard part is they see her so happy and bouncing around that she appears like nothing is wrong. I have heard the comment, well she looks healthy. It is not as if I want my child to be sick, or to gain unnecessary weight, just I want her to progress not regress. Plus I would really like to turn her around facing forward in the car that would be nice. Then again I have no money for a new car seat. I spent it on the fridge. HA!
I feel like I sometimes can be a little obsessive so I tend to not react right away to anything, so when the doctor's confirm that there is something wrong I feel like I should panic.
GI DOCTOR VISIT
After today's doctor visit I was livid! I was so angry I asked for our records. I wanted to scream and yell and throw myself on the floor. (I have been spending way too much time alone with small children...) But maybe a grown adult acting a fool will draw some attention to my daughters health.
This doctor had no idea we were in the hospital. HOW IS THAT POSSIBLE? When they said they spoke to you and you said you did not need to come visit us. Then noticed my frustration and tried to recover by stating, "Well we do not visit the ER..." I was PISSED, "Well we were there for 4 days you could have walked up 3 floors and seen us any day last week." I was so mad, he did nothing at our visit. Did examine her, just sat on his lap top typing. HE suggested that we reorder some tests. REORDER? Yep, reorder some tests. Like you didn't like first results so lets try again. THERE ARE NO DO OVERS WHEN YOU ARE STABBING MY CHILD WITH NEEDLES!
I was so mad! Apparently, SOMEONE, I am holding him responsible did not test for the gluten allergy last time they drew blood. So they want to try again. Who wrote the report? WHY AM I GOING BACK TO THE SAME LAB THEN? They didn't test for the correct items in her stool sample either. Whose fault is that? Certainly not Madison's yet they continue to punish her. I mentioned she now has consistent gas, and he actually looked up from his lap top and walked over to her. Who knew that was an alarming side effect to whatever is going on. He said her CO2 levels are extremely LOW. What does that mean??? He wants to check her dehydration levels as well. That would have been nice prior to our week long stay at the hospital.
He said he wanted her to drink more pedi-sure. I was so mad. She cannot LIVE off of liquids. I am sorry but NO. If I give her anymore of that sugar CRAP she will not eat. As if I am starving my child. I need her to eat food not live off a liquid diet. Plus she doesn't like it. Who would has anyone ever smelled that stuff it's disgusting! They look at me like I am not feeding her, or correctly. I am feeding her she just has something wrong and no one understands that.
I was so mad as we were about to leave he suggested we see him again in 4 weeks. I said so I will see the heart Dr two more times, the pediatrician 3 more times and what am I suppose to tell them what that you are on vacation? He said okay 2-3 weeks. UNBELIEVABLE!
So we check out and the girl says the next available apt is JUNE 30th... over a month away. I was so mad I said you know what can I just get a copy of our records! She looked at me like what... and then MAGICALLY there was a June 11th apt. I asked for the week prior and she said, "Well he will be on vacation." NO KIDDING!?!
I still want the records because we are getting a NEW doctor. I NEVER want to see this doctor ever again. HE had the nerve to tell me it doesn't really matter what the results are of this test that we keep retesting for and he will have to go in with a camera to confirm if the blood test is correct or incorrect. WHY torture this LITTLE girl then... The heart doctor suggested he would do an ultra sound of her intestines so to see rather than doing such an invasive procedure and to go in blind. This doctor confirmed all suspicions I have about Doctors! It is a guessing game and it is a race to see who is better at putting all the pieces together... and we are their test subjects!
This doctor had no idea we were in the hospital. HOW IS THAT POSSIBLE? When they said they spoke to you and you said you did not need to come visit us. Then noticed my frustration and tried to recover by stating, "Well we do not visit the ER..." I was PISSED, "Well we were there for 4 days you could have walked up 3 floors and seen us any day last week." I was so mad, he did nothing at our visit. Did examine her, just sat on his lap top typing. HE suggested that we reorder some tests. REORDER? Yep, reorder some tests. Like you didn't like first results so lets try again. THERE ARE NO DO OVERS WHEN YOU ARE STABBING MY CHILD WITH NEEDLES!
I was so mad! Apparently, SOMEONE, I am holding him responsible did not test for the gluten allergy last time they drew blood. So they want to try again. Who wrote the report? WHY AM I GOING BACK TO THE SAME LAB THEN? They didn't test for the correct items in her stool sample either. Whose fault is that? Certainly not Madison's yet they continue to punish her. I mentioned she now has consistent gas, and he actually looked up from his lap top and walked over to her. Who knew that was an alarming side effect to whatever is going on. He said her CO2 levels are extremely LOW. What does that mean??? He wants to check her dehydration levels as well. That would have been nice prior to our week long stay at the hospital.
He said he wanted her to drink more pedi-sure. I was so mad. She cannot LIVE off of liquids. I am sorry but NO. If I give her anymore of that sugar CRAP she will not eat. As if I am starving my child. I need her to eat food not live off a liquid diet. Plus she doesn't like it. Who would has anyone ever smelled that stuff it's disgusting! They look at me like I am not feeding her, or correctly. I am feeding her she just has something wrong and no one understands that.
I was so mad as we were about to leave he suggested we see him again in 4 weeks. I said so I will see the heart Dr two more times, the pediatrician 3 more times and what am I suppose to tell them what that you are on vacation? He said okay 2-3 weeks. UNBELIEVABLE!
So we check out and the girl says the next available apt is JUNE 30th... over a month away. I was so mad I said you know what can I just get a copy of our records! She looked at me like what... and then MAGICALLY there was a June 11th apt. I asked for the week prior and she said, "Well he will be on vacation." NO KIDDING!?!
I still want the records because we are getting a NEW doctor. I NEVER want to see this doctor ever again. HE had the nerve to tell me it doesn't really matter what the results are of this test that we keep retesting for and he will have to go in with a camera to confirm if the blood test is correct or incorrect. WHY torture this LITTLE girl then... The heart doctor suggested he would do an ultra sound of her intestines so to see rather than doing such an invasive procedure and to go in blind. This doctor confirmed all suspicions I have about Doctors! It is a guessing game and it is a race to see who is better at putting all the pieces together... and we are their test subjects!
PRIMARY DOCTOR VISIT
The office visit yesterday went somewhat okay. We met with the really nice doctor. He is concerned, and the best part about him HE LISTENS! Plus he backs me in my decisions. He backs me in delaying her shots. He backs me in fighting for my daughter by getting us a 2nd opinion. I just hope they are not worse than what we are going through.
She lost a lb since our last visit a week ago. She is so skinny I had to pull out 6-9 month clothes and the pants are falling off of her. I am discouraged these doctors are not working fast enough. Now we go in for weekly weight checks. Not only do I have to take off work, but the visits just keep going up and up.
He is angry at the GI doctor for ignoring us as it is obviously something wrong with her intestines. At least I hope that is what the problem... Not as if I hope my child is sick, it is that I just hope that is the solution to this sickness. I will hate to get through all this and learn it has nothing to do with the intestines and have to go through a whole new series of testing.
I asked for a list of all our office visits so I may track my expenses. If you want to make yourself feel better, asking for how much money you have spent on basically NO ANSWERS is not the best idea...
The doctor gave me his cell phone number, and offered to babysit if I ever wanted to go to a movie or something. What do you say to something like that? I said, "Well I just bought a house, so things are a bit hectic right now." Perfect response, "Oh you and your fiance? Boyfriend?" Then he had the look of shock when I mentioned no significant other like single parents cannot own their own home, especially considering her dad does NOTHING but change his phone number every time I get a hold of it. IF ONLY HE HAD A JOB. We don't have a roommate, Madison has taken over the spare room with her toys. I have not decided if living alone is worth it or not, but not having a TV is a bit strange. I suppose one day I will subject myself to the harsh overpricing of the finer electronics, but until now... We do not watch TV.
You would think that I am incredibly bored, but I actually am up late, and feel like there is not enough time in the day to do what I need to do so I wonder if I would even watch it if I had it. Probably just wouldn't get as much done.
Yesterday we bought a fridge. A new refrigerator! It is nice. As when we came home the other day to a wet kitchen the realization that the fridge died hurt! I didn't want to buy a refrigerator! I have incredibly expensive taste. I talked them into giving me free delivery, free set up, a rebate for picking up the old fridge, and an extra 10% off for it taking TEN days to be delivered. Some sort of back order, but of course I WANTED that fridge! So we wait...
She lost a lb since our last visit a week ago. She is so skinny I had to pull out 6-9 month clothes and the pants are falling off of her. I am discouraged these doctors are not working fast enough. Now we go in for weekly weight checks. Not only do I have to take off work, but the visits just keep going up and up.
He is angry at the GI doctor for ignoring us as it is obviously something wrong with her intestines. At least I hope that is what the problem... Not as if I hope my child is sick, it is that I just hope that is the solution to this sickness. I will hate to get through all this and learn it has nothing to do with the intestines and have to go through a whole new series of testing.
I asked for a list of all our office visits so I may track my expenses. If you want to make yourself feel better, asking for how much money you have spent on basically NO ANSWERS is not the best idea...
The doctor gave me his cell phone number, and offered to babysit if I ever wanted to go to a movie or something. What do you say to something like that? I said, "Well I just bought a house, so things are a bit hectic right now." Perfect response, "Oh you and your fiance? Boyfriend?" Then he had the look of shock when I mentioned no significant other like single parents cannot own their own home, especially considering her dad does NOTHING but change his phone number every time I get a hold of it. IF ONLY HE HAD A JOB. We don't have a roommate, Madison has taken over the spare room with her toys. I have not decided if living alone is worth it or not, but not having a TV is a bit strange. I suppose one day I will subject myself to the harsh overpricing of the finer electronics, but until now... We do not watch TV.
You would think that I am incredibly bored, but I actually am up late, and feel like there is not enough time in the day to do what I need to do so I wonder if I would even watch it if I had it. Probably just wouldn't get as much done.
Yesterday we bought a fridge. A new refrigerator! It is nice. As when we came home the other day to a wet kitchen the realization that the fridge died hurt! I didn't want to buy a refrigerator! I have incredibly expensive taste. I talked them into giving me free delivery, free set up, a rebate for picking up the old fridge, and an extra 10% off for it taking TEN days to be delivered. Some sort of back order, but of course I WANTED that fridge! So we wait...
Saturday, May 15, 2010
YARN BIN
least this one was done.
Thursday, May 13, 2010
LEAVING THE HOSPITAL
We have been released from the hospital. The idea is that she is stable enough to go home, but with directions to return if there are any reoccurring problems.
The diagnosis is undetermined or left up to she caught a virus... The unanswered question is what came first. The idea is either she was vomiting which caused the severe dehydration that caused her bowels to harden then causing it to poison her body, or the blocked bowels were poisoning her body causing her to vomit thus causing the severe dehydration. So the question is what initially caused the vomiting, or what caused the bowels not to pass. The decided it was severe constipation or irregular bowels, and we are required to follow up with the GI doctor. They assume she has a disease, where her body has an intolerance to wheat/gluten. In this case it appears to be an extreme intolerance.
The scariest part is I went to the doctor on Friday. I then went back to the doctor on Monday because she was vomiting. By Tuesday morning she was still vomiting and appearing lethargic and tired. I called the doctor on his cell phone at 6am. He said we could wait until they opened at 9am and bring her by, or wait until Wednesday for a follow up appointment if she did not get better. I was annoyed. Wait 3 hours while she got worse, so we went to the ER. Thank goodness I listened to myself and went to the ER. Even though it cost me more money, and may have cost a fortune staying there for 3 days, but the end result is that she could have died.
She was so dehydrated they couldn't get an IV started. They had to try 3 times before they could draw blood. They said normal levels are between 24-19 and sometimes you can drop down to 18. However, Madison was at a 10. They admitted her and began fluids immediately. They said she would need to be stable and eating before they released us. She was not eating, but I blame that on the food rather than she did not want to eat.
So we follow up with the doctor on Monday, the GI doctor on Thursday, and the heart doctor in 2 weeks.
When we checked out they said you have payed your copay and we will bill you for any remaining balances. LOVELY! I wonder how much this experience is going to cost me.
The diagnosis is undetermined or left up to she caught a virus... The unanswered question is what came first. The idea is either she was vomiting which caused the severe dehydration that caused her bowels to harden then causing it to poison her body, or the blocked bowels were poisoning her body causing her to vomit thus causing the severe dehydration. So the question is what initially caused the vomiting, or what caused the bowels not to pass. The decided it was severe constipation or irregular bowels, and we are required to follow up with the GI doctor. They assume she has a disease, where her body has an intolerance to wheat/gluten. In this case it appears to be an extreme intolerance.
The scariest part is I went to the doctor on Friday. I then went back to the doctor on Monday because she was vomiting. By Tuesday morning she was still vomiting and appearing lethargic and tired. I called the doctor on his cell phone at 6am. He said we could wait until they opened at 9am and bring her by, or wait until Wednesday for a follow up appointment if she did not get better. I was annoyed. Wait 3 hours while she got worse, so we went to the ER. Thank goodness I listened to myself and went to the ER. Even though it cost me more money, and may have cost a fortune staying there for 3 days, but the end result is that she could have died.
She was so dehydrated they couldn't get an IV started. They had to try 3 times before they could draw blood. They said normal levels are between 24-19 and sometimes you can drop down to 18. However, Madison was at a 10. They admitted her and began fluids immediately. They said she would need to be stable and eating before they released us. She was not eating, but I blame that on the food rather than she did not want to eat.
So we follow up with the doctor on Monday, the GI doctor on Thursday, and the heart doctor in 2 weeks.
When we checked out they said you have payed your copay and we will bill you for any remaining balances. LOVELY! I wonder how much this experience is going to cost me.
HOSPITAL FOOD
The hospital was very nice and help, the only bad part was the food. The food was horrific. I suppose I spoil my child with well prepared food choices. She eats organic everything. So when they brought us non-organic vegetables and fruit she noticed immediately. Of course this was after we had to explain that vegetarians do not eat HAM. She LOVES peas, but we only buy organic. I wondered if she would be able to tell. She was so excited to see familiar food, but as soon as it hit her mouth she was spitting it out and rubbing her mouth. She tried a couple of times, I am sure because she was confused about why this familiar food tasted so different.
It is sad that the food was so horrible. They started with all starch. I mean each meal that came was loaded with breads and cheeses. For being a hospital it was mind-boggling. The administration came by to see how our stay was going and I complained. I said there were no vegetables or fruit with breakfast or lunch, maybe the average person doesn't eat like that but a vegetarian must. So they fixed it right away, which was very nice. Plus the nurse was super wonderful and mentioned the HAM experience.
It is sad that the food was so horrible. They started with all starch. I mean each meal that came was loaded with breads and cheeses. For being a hospital it was mind-boggling. The administration came by to see how our stay was going and I complained. I said there were no vegetables or fruit with breakfast or lunch, maybe the average person doesn't eat like that but a vegetarian must. So they fixed it right away, which was very nice. Plus the nurse was super wonderful and mentioned the HAM experience.
Tuesday, May 11, 2010
SUMMERLIN HOSPITAL
This sucks! I know they are looking at this like it's my fault. They keep coming in here asking if immunization is not an option... At least the nurse relaxed when I explained that she has had an
underlying condition from the beginning and it was decided not to jeopardize her already unstable immunine system. Its better to be safe in terms of making her sicker than preventative to something she may or may not get... Plus coming from the advice of her doctor helps as well... Thank goodness he is honest rather than politically driven...
underlying condition from the beginning and it was decided not to jeopardize her already unstable immunine system. Its better to be safe in terms of making her sicker than preventative to something she may or may not get... Plus coming from the advice of her doctor helps as well... Thank goodness he is honest rather than politically driven...
This has been going on for sometime so thank goodness I didn't subject her to more viruses and disease even though it is scary.
Sent from my Iphone
IN THE HOSPITAL
Madison is sick. We went to the doctor Friday for a heart check up. I swear she catches something everytime we leave these nasty places.
She got a cough Friday night and by Sunday she was vomiting. She hasn't eaten since Saturday. Yesterday we went to the doctors office. They sent us home and told us it was a virus. This morning she was vomiting to the point of hurling and choking because there was nothing left to come up so I called the dr. Love having his cell phone number... Since it was 630am he said come here.
So we arrived to the ER. They poked her 3 times before getting it right. Gave her fluids took blood but have no answers. So now we are being admitted until she gets better...
I'm scared, hungry, tired, and frustrated! They look at me with squished eyebrows when they ask if her shots are up to date... Like this is my fault she's sick... Thank goodness the dr agreed with me to hold off on her shots until she's well... 12 months later she's still not well... It appears to be getting worse... Hasn't this been going on long enough!
I am beginning to dislike those that work in the medical field mostly nurses who can't draw blood and staff that run useless tests over and over again... She has no symptoms of RV yet we've had the text ran 5 times. It's negative so figure out something else that could be wrong.
She got a cough Friday night and by Sunday she was vomiting. She hasn't eaten since Saturday. Yesterday we went to the doctors office. They sent us home and told us it was a virus. This morning she was vomiting to the point of hurling and choking because there was nothing left to come up so I called the dr. Love having his cell phone number... Since it was 630am he said come here.
So we arrived to the ER. They poked her 3 times before getting it right. Gave her fluids took blood but have no answers. So now we are being admitted until she gets better...
I'm scared, hungry, tired, and frustrated! They look at me with squished eyebrows when they ask if her shots are up to date... Like this is my fault she's sick... Thank goodness the dr agreed with me to hold off on her shots until she's well... 12 months later she's still not well... It appears to be getting worse... Hasn't this been going on long enough!
I am beginning to dislike those that work in the medical field mostly nurses who can't draw blood and staff that run useless tests over and over again... She has no symptoms of RV yet we've had the text ran 5 times. It's negative so figure out something else that could be wrong.
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