Monday, May 31, 2010
HOME AT LAST!
A friend had a baby the first week while we were staying in the hospital... she left before we did. This last week another friend had her baby... and she left before we did. I was so jealous. All we wanted to do was go home! I am so glad it is OUR TURN!!! I have never been so excited to be FREE to just drive ANYWHERE I WANT. :O)
THANK YOU!!
I never realized how many people actually read about our life. It is flattering! I appreciate everyone being so helpful and thoughtful during this horrid month. Thank you to everyone who reads our blog, to those that have offered anything and everything, to those who came to visit us, brought us goodies, and those that wrote, called, and messaged. It meant so much to know that we were not alone and that there were people thinking about us.
FREEDOM!!!
WE ARE HOME!!! I have never been so excited to see sunlight! I have never been so excited to feel the warm summer heat on my skin. Yes, it was extremely warm so that feeling only lasted seconds, as it is practically June in Las Vegas.
Madison tested positive for Rotovirus. I cannot believe how disturbing it is to know that while trying to do what is best for my daughter she catches a nasty virus that only sets us back again. Today she was a little tired, a little fussy, and a little traumatized. She was so excited to see our house.
The admitting department was not happy with me as I packed my wallet in one of the many bags we had acquired while staying there so didn't want to unpack everything just to pay my copay. I am so frustrated that I have to pay it in the first place. I was hoping that magically they would forget that I owe them money, wishful thinking as no one is that lucky.
Madison tested positive for Rotovirus. I cannot believe how disturbing it is to know that while trying to do what is best for my daughter she catches a nasty virus that only sets us back again. Today she was a little tired, a little fussy, and a little traumatized. She was so excited to see our house.
The admitting department was not happy with me as I packed my wallet in one of the many bags we had acquired while staying there so didn't want to unpack everything just to pay my copay. I am so frustrated that I have to pay it in the first place. I was hoping that magically they would forget that I owe them money, wishful thinking as no one is that lucky.
Friday, May 28, 2010
CRAVING FRESHAIR
Madison ate a whole banana today. She did not throw up this afternoon. However, she did sleep all day. She slept from 11am-5pm. I thought for sure she would be up all night, but she went to sleep by 8pm and is still asleep. After lying around all day I cannot sleep. I cannot believe we have been here for a week. A week without fresh air, a week without sunlight. I am so sad for her. I really hope we can get out tomorrow. My plan is to take her to the park so she can be in the sun and breath real air. I mean I have never been so excited to go outside into the pollution smog filled city air to breathe.
My parents think we will be leaving tomorrow. I think they are going to keep us another day. She is still on the IV fluids, and with the repeat week long stay I think they are going to take no chances. Especially since they were about to release us on Wednesday and three days later we are still here. I assume they will take her off the fluids tomorrow and see how she eats. We cannot leave if she is not eating and drinking.
Today she ate some of my carrot banana smoothie. She surprisingly loved it, to the point that if you moved the cup she would scream.
My parents think we will be leaving tomorrow. I think they are going to keep us another day. She is still on the IV fluids, and with the repeat week long stay I think they are going to take no chances. Especially since they were about to release us on Wednesday and three days later we are still here. I assume they will take her off the fluids tomorrow and see how she eats. We cannot leave if she is not eating and drinking.
Today she ate some of my carrot banana smoothie. She surprisingly loved it, to the point that if you moved the cup she would scream.
NEVER ENDING
Maybe we get to leave tomorrow? I HOPE FOR TOMORROW as we are not leaving today. The dr said they have someone that was admitted when we were with the same symptoms so we are not the rarest case, as if that is suppose to be comforting. I feel like we take one step forward and 12 steps backwards. She seems worse than yesterday. She seemed so much better this morning. She is just exhausted and just stares at you while in the crib. She saw me lay down on the bed across from her, and she just waves her hand at me. It is heart breaking.
HOSPITAL COPAY
I was visited by the administration for the hospital. I was told that my copay is $250.00 for the visit and they will pay 100% there after. The copay is per visit. SO that is the catch. Since we had a visit a week ago and were discharged, yet came back for the same reasons doesn't matter BECAUSE WE HAD BEEN DISCHARGED, we still owe per visit. So angry about that part, we suffer mentally, emotionally, physically, and now financially because they screwed up REPEATEDLY. First they discharge her too early, then they do not admit her when she's obviously extremely ill so we return only an hour later. I better not have to pay for the 12 hour stay in the ER the day before we were admitted. They are smart they have you wait in the ER for the entire day and the paperwork says you were in the ER on Sunday, but you were admitted on Monday so what they can charge you for 2 different days.
Thank goodness I have health insurance. My thoughts are to put her father down as the primary party responsible for this event and have them bill him to see if he pays it. I wonder if I am able to do that, have them bill him. It is the least he could do! We will see what they say when we leave.
Thank goodness I have health insurance. My thoughts are to put her father down as the primary party responsible for this event and have them bill him to see if he pays it. I wonder if I am able to do that, have them bill him. It is the least he could do! We will see what they say when we leave.
MY STARVING CHILD
Madison has to have some GI procedure where she cannot eat for 4 hours. So they decided she could not have any food from 4am until 8am when the procedure was suppose to happen. It is now 9am and my daughter is screaming because she is so hungry while I sit hopeless unable to help her. This sucks! The only thing that seems to help her is walking around the floor. I think we may have done about 30 rounds... they better take her soon this is ridiculous.
MORE DIARRHEA ON DAY 6
This is terrible... To the point I am throwing away clothes that's how bad it is. Madison woke me with this strange throat type cry. It took me a minute to gather myself. Once I was able to see I notices she was soaked from the waist down. She was covered in diarrhea. Poor baby! I contemplated how long shed been like that. The blanket was soaked. I debate cleaning the outfit or throwing it away. I've throw two out furs away already they were that stained. I just washed our favorite blanket in hopes it's not stained. This sucks!The hardest part we have no laundry, so we must wash it in the bathroom or leave it until I can get home to attend to it. I think I may just toss this one. Well it's not like she completely furs these clothes anyhow. Plus she will need more season appropriate clothes coming up soon.
DAY 5 IN THE HOSPITAL
This is AWFUL! We were suppose to leave today, Madison looked so much better. She ate some bananas and some sweet potatoes. A few hours later she was vomiting and had diarrhea. We were not going anywhere. I am so frustrated!
The doctor talked to us and told us we should probably keep her under isolation, as we do not want her to catch anything else. He said this place is worse than a daycare in terms of germs. So what am I suppose to do for this poor child lock her in this bubble metal crib they have her sleeping in. She has not crawled around in a week. She cannot stand because they have an IV in her foot, and now I am suppose to keep her in our room.
He said that this is not the rarest case he has ever seen, that it is typical for small children especially between the ages of 1-2 to be hospitalized for a few days for dehydration and vomiting. He asked what you have been here 3 days... NO! We have been here since SUNDAY and we were here 4 days a week before that. We are going on 6 days this week in the hospital. He then said that we could do an upper GI check to confirm that there isn't anything seriously wrong. Poor Madison is traumatized with everyone poking and touching her and here we go again.
They came in to check her vitals which is blood pressure, oxygen levels, and temp. They do this every 4 hours. She was hysterical afterwards. To the point I was so upset I started crying. She was screaming and rolling around for about an hour total. I didn't know what to do, so I decided to take her out into the hall and stand at the nurses station. They can see what they are doing to this poor child. I stood there until she somewhat calmed down and then we went for a wagon ride. They seemed a little shocked LIKE I MAKE THIS CRAP UP!!! I was so mad the tech that actually made her panic came by 30 minutes later when she was still choking on her own breath and was like she is still upset, like what she did was not that traumatizing. I have decided that I will do this every single time so they can see what they are doing, and maybe they will get tired of me and leave her alone. Tonight one nurse came in and she was super nice and gentle and Madison didn't panic or freak out. It is these nurses that walk around with this attitude with no compassion and bully her that she freaks out.
Tomorrow we are suppose to go for a GI test where she swallows some sort of liquid and they photograph the flow of this substance to make sure everything is working correctly and flowing in the right direction. I cannot take much more of this. I asked my parents to come to go down with her so that I can take a break and possibly get some more work done. Hopefully I do not regret this decision. I am tired, scared, and angry. My child is freaking out, being tortured, and sick, and there is nothing I can do about it...
We have been given a patient advocate to assist us. I am not sure what good that does, but at least someone is listening to us. It gets them more incline to assist or explain things in a friendly manor rather than this medical jargon crap. I am a highly educated person, so I understand K means Potassium or CH is Chloride, but that does not mean I understand ALL THEIR MEDICAL JARGON... I think they were a bit surprised I even understand what I do.
They sent in an dietitian to assist us. What a joke that was! She came in and had no idea why she was here. She said well the doctors were concerned because you are a vegetarian and they were afraid you are not getting enough substance. I know more than she does. I said so basically you have no idea why you are here. I told her my concern is that Madison is having diarrhea and I want food options for her besides stale hard crusted half cooked rice and burnt toast. She is not going to eat this crap! There is nothing nutritional about this garbage they keep sending masked as food. The lady gave me a menu. It was horrific. She was so vague I wanted to smack her. She was telling me I need to eat whole grains, fruits, and vegetables, REALLY YOU THINK! I was so mad. I said could you be a little more specific like perhaps a big concern for vegetarians is a lack in omega 3s and B12 so maybe you should eat these specific foods. She had no idea where to find Zinc, B12 or Omega3s. She suggested pills or supplements. TYPICAL! I was mad. I said never mind. Obviously I am more aware of what I need to supplement into my meals as I have been doing this for a long time. Plus I read books. I try to coordinate different food options like I know Almonds should be eaten daily because they give you those omega 3s. I would rather eat Almonds than spend money on pills. Just another person who was in a hurry to get out of our room trying to brush us off.
The doctor talked to us and told us we should probably keep her under isolation, as we do not want her to catch anything else. He said this place is worse than a daycare in terms of germs. So what am I suppose to do for this poor child lock her in this bubble metal crib they have her sleeping in. She has not crawled around in a week. She cannot stand because they have an IV in her foot, and now I am suppose to keep her in our room.
He said that this is not the rarest case he has ever seen, that it is typical for small children especially between the ages of 1-2 to be hospitalized for a few days for dehydration and vomiting. He asked what you have been here 3 days... NO! We have been here since SUNDAY and we were here 4 days a week before that. We are going on 6 days this week in the hospital. He then said that we could do an upper GI check to confirm that there isn't anything seriously wrong. Poor Madison is traumatized with everyone poking and touching her and here we go again.
They came in to check her vitals which is blood pressure, oxygen levels, and temp. They do this every 4 hours. She was hysterical afterwards. To the point I was so upset I started crying. She was screaming and rolling around for about an hour total. I didn't know what to do, so I decided to take her out into the hall and stand at the nurses station. They can see what they are doing to this poor child. I stood there until she somewhat calmed down and then we went for a wagon ride. They seemed a little shocked LIKE I MAKE THIS CRAP UP!!! I was so mad the tech that actually made her panic came by 30 minutes later when she was still choking on her own breath and was like she is still upset, like what she did was not that traumatizing. I have decided that I will do this every single time so they can see what they are doing, and maybe they will get tired of me and leave her alone. Tonight one nurse came in and she was super nice and gentle and Madison didn't panic or freak out. It is these nurses that walk around with this attitude with no compassion and bully her that she freaks out.
Tomorrow we are suppose to go for a GI test where she swallows some sort of liquid and they photograph the flow of this substance to make sure everything is working correctly and flowing in the right direction. I cannot take much more of this. I asked my parents to come to go down with her so that I can take a break and possibly get some more work done. Hopefully I do not regret this decision. I am tired, scared, and angry. My child is freaking out, being tortured, and sick, and there is nothing I can do about it...
We have been given a patient advocate to assist us. I am not sure what good that does, but at least someone is listening to us. It gets them more incline to assist or explain things in a friendly manor rather than this medical jargon crap. I am a highly educated person, so I understand K means Potassium or CH is Chloride, but that does not mean I understand ALL THEIR MEDICAL JARGON... I think they were a bit surprised I even understand what I do.
They sent in an dietitian to assist us. What a joke that was! She came in and had no idea why she was here. She said well the doctors were concerned because you are a vegetarian and they were afraid you are not getting enough substance. I know more than she does. I said so basically you have no idea why you are here. I told her my concern is that Madison is having diarrhea and I want food options for her besides stale hard crusted half cooked rice and burnt toast. She is not going to eat this crap! There is nothing nutritional about this garbage they keep sending masked as food. The lady gave me a menu. It was horrific. She was so vague I wanted to smack her. She was telling me I need to eat whole grains, fruits, and vegetables, REALLY YOU THINK! I was so mad. I said could you be a little more specific like perhaps a big concern for vegetarians is a lack in omega 3s and B12 so maybe you should eat these specific foods. She had no idea where to find Zinc, B12 or Omega3s. She suggested pills or supplements. TYPICAL! I was mad. I said never mind. Obviously I am more aware of what I need to supplement into my meals as I have been doing this for a long time. Plus I read books. I try to coordinate different food options like I know Almonds should be eaten daily because they give you those omega 3s. I would rather eat Almonds than spend money on pills. Just another person who was in a hurry to get out of our room trying to brush us off.
TRAUMATIZED LITTLE ONE
They replaced my bed after about the 5th complaint. The bed had some sort of hole in the center. Of course my mother noticed it after she went to change the sheets when Madison threw up everywhere. She was mad. The bed just sunk down in the center. No wonder I hurt EVERYWHERE.
The worst part all of this is that they keep switching our nurse. If they left us with the same nurse maybe Madison could become more familiar with someone and not have to meet a stranger every shift change. We did have one day nurse for the first couple of days, who was awesome, but she is now off for 4 days. At the rate we are going we will be here when she returns back to her shift. I certainly HOPE not.
The smelly nurse is back. No wonder Madison screams she stinks like a mixture between stale smoke possibly even cigars, BO, bad choice in perfume, and sour bad breath... She was the one that put Madison into an hour long panic attack. I think she feels some remorse as she is being incredibly quiet this time trying not to wake her.
I just hope I have not done serious damage to my child by coming to this hospital... I hope she is young enough to not remember any of this or for it to have an effect on her personality.
The worst part all of this is that they keep switching our nurse. If they left us with the same nurse maybe Madison could become more familiar with someone and not have to meet a stranger every shift change. We did have one day nurse for the first couple of days, who was awesome, but she is now off for 4 days. At the rate we are going we will be here when she returns back to her shift. I certainly HOPE not.
The smelly nurse is back. No wonder Madison screams she stinks like a mixture between stale smoke possibly even cigars, BO, bad choice in perfume, and sour bad breath... She was the one that put Madison into an hour long panic attack. I think she feels some remorse as she is being incredibly quiet this time trying not to wake her.
I just hope I have not done serious damage to my child by coming to this hospital... I hope she is young enough to not remember any of this or for it to have an effect on her personality.
Thursday, May 27, 2010
Wednesday, May 26, 2010
STILL SICK
I think everyone is shocked that she is BACK on the IV. Plus the IV looks horrible. They put it in the worst spot EVER. in the inner arm elbow crease. She cannot bend her arm its all back logged with blood. It looks awful.
They keep checking it because of course they do not want to redo it. Last night was rough. The PEDs Dr just called to follow up with us to confirm how we are doing. He is very concerned and looking at calling the hospital to coordinate with the admitting doctor to figure this out.
She woke up with vomit everywhere and in her hair and across her chest on top of having a massive bowel movement. They were pretty much the same thing. It was horrible. I am surprised there is anything left in her she hasn't been eating much or drinking anything. Poor baby!
We are back on the IV and fluids until they tell us otherwise. She sleeps while I thought I would try to get some work done. I have yet to have a shower. I am going on day 4 in the same clothes and lack of shower. The nurse asked why I don't go home and shower. I asked if she was going to sit with her, she said what about dad. Yeah since he doesn't know we are here that probably won't work. Thank goodness my mother is able to come here. I suggested earlier than later as she is sleeping, but my mother is where my sister gets her girly personality from as she showers regularly does her hair and wears make up. HA! Me on the other hand I am not that girly.
They keep checking it because of course they do not want to redo it. Last night was rough. The PEDs Dr just called to follow up with us to confirm how we are doing. He is very concerned and looking at calling the hospital to coordinate with the admitting doctor to figure this out.
She woke up with vomit everywhere and in her hair and across her chest on top of having a massive bowel movement. They were pretty much the same thing. It was horrible. I am surprised there is anything left in her she hasn't been eating much or drinking anything. Poor baby!
We are back on the IV and fluids until they tell us otherwise. She sleeps while I thought I would try to get some work done. I have yet to have a shower. I am going on day 4 in the same clothes and lack of shower. The nurse asked why I don't go home and shower. I asked if she was going to sit with her, she said what about dad. Yeah since he doesn't know we are here that probably won't work. Thank goodness my mother is able to come here. I suggested earlier than later as she is sleeping, but my mother is where my sister gets her girly personality from as she showers regularly does her hair and wears make up. HA! Me on the other hand I am not that girly.
Tuesday, May 25, 2010
THE PEDS DOCTOR
Since everything on this blog this month has been so sad, here is something more uplifting...
Our PEDS doctor showed up last night about 8pm and stayed for an hour. He was so sweet. He asked about Madison and of course was sad to see her in her condition. He explained the different specialists and tests that will be done.
At one point the conversation veered off course towards Madison's father. At another point it shifted to my new house and how I need to buy a TV. So he mentioned he has a TV that he is not using, which I couldn't tell if he was saying if you want my enormously large TV you can have it or if we were just talking about TVs. A SONY 1080p 65" HDTV that he is not using. That is massively large, but I would so do it.
It was so nice to have adult interaction and conversation. He has been practicing for 10 years. How old does that make him? I figured he was around 38 years old, but is that rude to ask...
SO this morning he was texting me to say HI and hoped that Madison was well. I was not sure how to respond... I am still not sure what to say...
Our PEDS doctor showed up last night about 8pm and stayed for an hour. He was so sweet. He asked about Madison and of course was sad to see her in her condition. He explained the different specialists and tests that will be done.
At one point the conversation veered off course towards Madison's father. At another point it shifted to my new house and how I need to buy a TV. So he mentioned he has a TV that he is not using, which I couldn't tell if he was saying if you want my enormously large TV you can have it or if we were just talking about TVs. A SONY 1080p 65" HDTV that he is not using. That is massively large, but I would so do it.
It was so nice to have adult interaction and conversation. He has been practicing for 10 years. How old does that make him? I figured he was around 38 years old, but is that rude to ask...
SO this morning he was texting me to say HI and hoped that Madison was well. I was not sure how to respond... I am still not sure what to say...
DEATH IN THE ICU
Madison cannot walk she is way to skinny to hold herself up. She cannot crawl around on the floor because we are in a disgustingly dirty hospital. I feel horrible keeping her locked up in this room. So we take wagon rides throughout the day. She sits in the wagon while I walk the floors, and she loves it. There is a little boy with cancer across from us. He is so CUTE she loves seeing him when he does his walks. There is a 14 year old girl who loves seeing Madison so we walk by her room and wave. We walk by the nurses desks and she loves waving hello to them.
So I guess we are next to ICU or in a room on the ICU ward. Well we walk by a room with a lady sitting at a desk set up in the hall. Madison waves and makes her squeal when she is excited. I was surprised because lately she dislikes any new strangers. She was even nervous about seeing the best friend who she KNOWS better than her own father. So the lady waves and says hello. Tells us she is sorry for being in the hall but she is monitoring the baby and points to the baby in the room. I look and there is a small child about Madison's size (doesn't say much since we are wearing 6-9 month clothes that fall off of her). We think nothing of it and head back to the room.
Later we are in our room when the alarms go off stating CODE BLUE in RM... Madison was napping so once she was awake they come to take more vitals and blood so to calm her down again I take her out in the wagon. We exit our room and it is a staff meeting in front of our door. IT looked bad. Our nurse was upset you could see it in her face. When we get a few doors down where the nurse had been set up no one is around. The room is empty. We quickly pass the area and move back towards our room. At the other end of the ward there is an open door and a lady starts screaming to someone. She was hysterical screaming about how her baby is gone. That she lost him. He died and that she will never have him back. My heart just sunk into my chest as I stare at Madison. She may be sick but at least she is alive. I felt horrible as I hear the nurses at the desk comment that the room on the end is being used for the mother. No one was helping this lady. I wanted everyone to stop what they were doing and acknowledge the fact that the world is different. The world had stopped for this lady, but IT was as if nothing traumatic happened to everyone else. I wanted to scream and kick and yell for her. I cannot imagine her pain. The floor seemed exactly the same as everyone went about their day like it was normal. I felt horrible for her. I wanted to scream at the nurses myself for just walking by or meeting in the halls talking about it when this mother was grieving.
I do not know who reads this blog, but if you think of us or pray for us, I hope you take moment to pray for this mother of the baby in room 547 because no one should have to endure that. She will need more strength than anyone can comprehend right now, and she will not be able to do it alone. The feeling around that end of the ward is eerie. Madison stares and points at the room making this ughhh noise. It is strange because I wonder if she understands what happened or sees or senses something that we as adults do not.
So I guess we are next to ICU or in a room on the ICU ward. Well we walk by a room with a lady sitting at a desk set up in the hall. Madison waves and makes her squeal when she is excited. I was surprised because lately she dislikes any new strangers. She was even nervous about seeing the best friend who she KNOWS better than her own father. So the lady waves and says hello. Tells us she is sorry for being in the hall but she is monitoring the baby and points to the baby in the room. I look and there is a small child about Madison's size (doesn't say much since we are wearing 6-9 month clothes that fall off of her). We think nothing of it and head back to the room.
Later we are in our room when the alarms go off stating CODE BLUE in RM... Madison was napping so once she was awake they come to take more vitals and blood so to calm her down again I take her out in the wagon. We exit our room and it is a staff meeting in front of our door. IT looked bad. Our nurse was upset you could see it in her face. When we get a few doors down where the nurse had been set up no one is around. The room is empty. We quickly pass the area and move back towards our room. At the other end of the ward there is an open door and a lady starts screaming to someone. She was hysterical screaming about how her baby is gone. That she lost him. He died and that she will never have him back. My heart just sunk into my chest as I stare at Madison. She may be sick but at least she is alive. I felt horrible as I hear the nurses at the desk comment that the room on the end is being used for the mother. No one was helping this lady. I wanted everyone to stop what they were doing and acknowledge the fact that the world is different. The world had stopped for this lady, but IT was as if nothing traumatic happened to everyone else. I wanted to scream and kick and yell for her. I cannot imagine her pain. The floor seemed exactly the same as everyone went about their day like it was normal. I felt horrible for her. I wanted to scream at the nurses myself for just walking by or meeting in the halls talking about it when this mother was grieving.
I do not know who reads this blog, but if you think of us or pray for us, I hope you take moment to pray for this mother of the baby in room 547 because no one should have to endure that. She will need more strength than anyone can comprehend right now, and she will not be able to do it alone. The feeling around that end of the ward is eerie. Madison stares and points at the room making this ughhh noise. It is strange because I wonder if she understands what happened or sees or senses something that we as adults do not.
BACK ON FLUIDS
They removed her IV, and now she is back on an IV at 35cc per hour. She was at 50cc per hour but that was too much and got down to 15, but for some reason she is just not getting well. She will not eat or drink anything. She breastfeeds but not much. So we are back on IV fluids, not the ones with the carbon, but this one is fluids with potassium. This sucks! Poor baby. The IV looks horrible. Here I thought the first one looked bad, this one is awful!
I HATE THIS HOSPITAL!
I HATE this hospital. I am not an angry person. I don't even hate her father. I am not even angry at her dad for not being here, that is how non-confrontational I am, but I HATE this place. I rarely get mad, but this is ridiculous!
Maybe it is the neglect we received when we first got here allowing her fever to spike to 105 degrees. Then again maybe it is the idiot labs that take blood for a living and still cannot do it correctly. Or maybe it is the fact that they cannot tell me what is wrong with my daughter. We have been here a total of 3 different times. I am tired of the response it is a VIRUS...
Tonight she finally got quiet on my chest when the fire alarm goes off. You have got to be kidding me a FIRE ALARM at 9pm at night. She was crying and awake. No emergency we are just not able to use the elevators. GREAT! What is wrong with this place!
I considered taking a shower when she fell asleep, oh wait that probably wouldn't be such a good idea as they do not have hot water from 10am -5am. UN-FREAKING-BELIEVABLE! I suppose another few days of no shower wearing the same clothes wont hurt anything... OMG!
Maybe it is the neglect we received when we first got here allowing her fever to spike to 105 degrees. Then again maybe it is the idiot labs that take blood for a living and still cannot do it correctly. Or maybe it is the fact that they cannot tell me what is wrong with my daughter. We have been here a total of 3 different times. I am tired of the response it is a VIRUS...
Tonight she finally got quiet on my chest when the fire alarm goes off. You have got to be kidding me a FIRE ALARM at 9pm at night. She was crying and awake. No emergency we are just not able to use the elevators. GREAT! What is wrong with this place!
I considered taking a shower when she fell asleep, oh wait that probably wouldn't be such a good idea as they do not have hot water from 10am -5am. UN-FREAKING-BELIEVABLE! I suppose another few days of no shower wearing the same clothes wont hurt anything... OMG!
BLOOD TECHS
I hate this hospital! For how much education these people require they are IDIOTS! Madison's doctor requested tests to be ran. They come to take blood. They do this for a living you would think they would know what they are doing. 3 veins later they actually take blood. She is hysterical and they get the required blood.
This morning they come back in at 5am. My nurse was pissed. She yelled at them and said I do not care this little girl is sick and you do not NEED this blood at 5am. NO get out! She made them come back while she was not sleeping. So they returned today. They were here to take blood. I of course wanted to know why. They said your doctor put in more orders. I was PISSED! I started yelling. NO HE DIDN'T. I went off. He was so angry at these idiots! He didn't put in new orders they were trying to cover up the fact that they did not draw the right amount of blood. This is your job, this is what you do, how do you screw it up that bad. So they had to draw more blood.
It makes me so angry that they restrain her and practically lay on her and the tell her oh it's okay. I was so mad. I was like NO it is not okay you are hurting her do not TELL her it is OKAY because it is not OKAY. So they get blood from one vein and I grabbed her she was hysterical. They wanted more. The nurse came in to make sure they gathered the right amount as they messed up the first time. THESE STUPID TECHS cut her heel to gather 10ml. She was screaming. That is WAY to much to gather from a heel. Finally they left. I told the nurse if they come back I will get up in jail for assault so you better keep them away from my daughter.
Before the nurse was parting shifts for the day, she came up to me and said that these MORONS did not collect enough blood AGAIN! They were told how much to collect, but apparently they didn't fill the right tubes. I was so mad! I said NO absolutely not no test is worth this, it's just a guessing game. The dr can deal with the fact that it was not done. They touch her I will fight, scream, beat them down, and sue this hospital. She said I agree this is ridiculous. The dr is so angry he could not believe they had poked her so many times. Her poor arm has tiny little poke holes and bruises all over.
Thank goodness the test they didn't run is just an allergy test so it wont get us out of the hospital any faster. So it is something that we can follow up with the GI dr at a later date. Give this poor child a break. She panics every time someone comes into our room and it takes forever to calm her down. It is awful!
This morning they come back in at 5am. My nurse was pissed. She yelled at them and said I do not care this little girl is sick and you do not NEED this blood at 5am. NO get out! She made them come back while she was not sleeping. So they returned today. They were here to take blood. I of course wanted to know why. They said your doctor put in more orders. I was PISSED! I started yelling. NO HE DIDN'T. I went off. He was so angry at these idiots! He didn't put in new orders they were trying to cover up the fact that they did not draw the right amount of blood. This is your job, this is what you do, how do you screw it up that bad. So they had to draw more blood.
It makes me so angry that they restrain her and practically lay on her and the tell her oh it's okay. I was so mad. I was like NO it is not okay you are hurting her do not TELL her it is OKAY because it is not OKAY. So they get blood from one vein and I grabbed her she was hysterical. They wanted more. The nurse came in to make sure they gathered the right amount as they messed up the first time. THESE STUPID TECHS cut her heel to gather 10ml. She was screaming. That is WAY to much to gather from a heel. Finally they left. I told the nurse if they come back I will get up in jail for assault so you better keep them away from my daughter.
Before the nurse was parting shifts for the day, she came up to me and said that these MORONS did not collect enough blood AGAIN! They were told how much to collect, but apparently they didn't fill the right tubes. I was so mad! I said NO absolutely not no test is worth this, it's just a guessing game. The dr can deal with the fact that it was not done. They touch her I will fight, scream, beat them down, and sue this hospital. She said I agree this is ridiculous. The dr is so angry he could not believe they had poked her so many times. Her poor arm has tiny little poke holes and bruises all over.
Thank goodness the test they didn't run is just an allergy test so it wont get us out of the hospital any faster. So it is something that we can follow up with the GI dr at a later date. Give this poor child a break. She panics every time someone comes into our room and it takes forever to calm her down. It is awful!
DAY 5 WITHOUT A SHOWER
I hate this! I swear these people should all be fired! We got a patient advocate. The dr ordered more labs. Poor Madison! I was like do I have a choice... No of course not but if it will get us out of here... So they draw more blood. Poor baby!!
So they said we can go home if she eats. Except she threw it up 2 times. They checked her levels and we are back on the fluids again. They told me they were so low that we were to add bicarb to our fluids. The IV went bad because they did it in a bad spot so they had to do it again.
I was so mad this poor girl has little poke holes and bruises all up her arm. What are they doing! While sitting here there is. Code PINK... Apparently they LOST a baby. So no one could leave.
I want a safe place for Madison and decided it was her room. They are not allowed to do procedures in her room. I don't care she needs somewhere where she feels safe because she's scared of anyone who walks into the room. So they took is to the procedure room try 3 different times. Cannot get an IV supposively because she's too dehydrated but I think it was because she's too small. They called in someone from NICU to help. First try she gets it in her foot. Poor thing an IV in her foot.
While in the room they have a code RED on the 3rd floor some spill in an OR... Then they had a fire somewhere. You have got to be kidding me.
So poor Madisons exhausted. They bring in a patient advocate to be aware of our treatment. So tonight shift change they tell me she's not to be on bicarb fluids because it's a typical dehydration case. No it's not! I was so mad! So here we are she's worse and all we want to do is go home.
I hurt everywhere. So tired and so frustrated. My friend had her baby today here... I hope they are having better luck than we are. At least we got a shower today and changed our clothes. That was great! Poor Madison needed a bath.
So they said we can go home if she eats. Except she threw it up 2 times. They checked her levels and we are back on the fluids again. They told me they were so low that we were to add bicarb to our fluids. The IV went bad because they did it in a bad spot so they had to do it again.
I was so mad this poor girl has little poke holes and bruises all up her arm. What are they doing! While sitting here there is. Code PINK... Apparently they LOST a baby. So no one could leave.
I want a safe place for Madison and decided it was her room. They are not allowed to do procedures in her room. I don't care she needs somewhere where she feels safe because she's scared of anyone who walks into the room. So they took is to the procedure room try 3 different times. Cannot get an IV supposively because she's too dehydrated but I think it was because she's too small. They called in someone from NICU to help. First try she gets it in her foot. Poor thing an IV in her foot.
While in the room they have a code RED on the 3rd floor some spill in an OR... Then they had a fire somewhere. You have got to be kidding me.
So poor Madisons exhausted. They bring in a patient advocate to be aware of our treatment. So tonight shift change they tell me she's not to be on bicarb fluids because it's a typical dehydration case. No it's not! I was so mad! So here we are she's worse and all we want to do is go home.
I hurt everywhere. So tired and so frustrated. My friend had her baby today here... I hope they are having better luck than we are. At least we got a shower today and changed our clothes. That was great! Poor Madison needed a bath.
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